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Impact of the COVID-19 pandemic on people with disabilities

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Individuals with disabilities are more susceptible to contracting COVID-19 and have higher mortality rates compared to those without disabilities. This is particularly true for people with intellectual and developmental disabilities, those residing in care facilities, and women with disabilities. Individuals with disabilities face heightened risks of mental health issues related to the pandemic, such as increased feelings of loneliness and isolation. They were also more likely to face domestic violence and abuse during the pandemic. People with disabilities are more likely to experience unemployment as a result of the pandemic and may require changes to the types of accommodations they require for work. Children with disabilities experience complications in their educational programming. Remote learning poses a host of challenges for children with disabilities, including disruptions to physical and occupational therapies and access to assistive technologies.[1]

Risk of disease

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According to United Nations (UN) estimates, roughly 46% of individuals aged 60 or older have a disability worldwide, and about 80% of the world's disabled population lives in developing countries, where access to health care is more limited. Globally, it is estimated that between 19% and 72% of COVID-related deaths have taken place in care facilities, an environment in which persons with disabilities are overrepresented.[2]

Facing resource shortages and overwhelmed health systems, several entities, such as the World Health Organization (WHO), the UN, and UNICEF, have expressed concern over disabled people's access to medical treatment for COVID-related disease and illness.[3] Several disability rights entities have expressed concern over medical rationing during the pandemic and have argued that such measures are ableist and discriminatory toward individuals with disabilities.[4] The vast majority of health care providers in the United States cannot use disability as grounds to ration care, as outlined both in the Americans with Disabilities Act and the Affordable Care Act.[5] In response to these concerns, the US Office for Civil Rights issued a bulletin at the end of March 2020 asserting that medical rationing measures cannot discriminate against people with disabilities and other protected groups.[6]

Based on figures issued by the Office for National Statistics, from March through May 2020, disabled people constituted roughly two-thirds of all COVID-related deaths in the United Kingdom. The report also concluded that disabled women were 11 times more likely than their non-disabled counterparts to die of complications from COVID and that disabled men were 6.5 times more likely to die of COVID-related illness than their non-disabled counterparts.[7] People with intellectual and developmental disabilities are at particularly high risk of contracting and dying from COVID. According to initial data from the United States, people with intellectual disabilities are four times more likely to contract COVID and twice as likely to die from the disease.[8]

Impact

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Social

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Previous research on pandemics has indicated that people with disabilities are more vulnerable to a host of social and psychological issues.[9] They are more likely to experience loneliness and isolation, which may lead to other poor health outcomes.[10] Women with disabilities and women who care for individuals with disabilities are at greater risk for domestic abuse and sexual violence during pandemics. They may also be unable to access reproductive care and may be more likely to experience socioeconomic disadvantages associated with the pandemic.[11]

Children with disabilities are also at higher risk for mental distress as a result of the pandemic and may also be at greater risk of experiencing domestic violence during the COVID crisis.[12] As of 2016, there were roughly 52 million children, age 5 and younger, with some form of developmental disability, and about 1 in 6 children in the United States, between the ages of 3 and 12, has a developmental disability.[13] Children with intellectual and developmental disabilities, especially those with autism spectrum disorder, may be more likely to experience anxiety, stress, and other ill effects resulting from the pandemic. They may be particularly sensitive to changes in their daily routines, such as school closures.[14] Children with disabilities are at higher risk of contracting COVID-19 and developing serious complications from the disease. They may not be able to adequately socially distance themselves while interacting with others, or they may not be able to wear masks due to sensory issues. This may lead to further isolation for disabled children and their families.[15]

The rise of virtual gatherings has allowed some people with disabilities to participate in activities that were previously difficult to attend. For example, individuals with certain physical disabilities do not need to worry about whether a location is wheelchair-accessible when the event is conducted fully online.[16]

Employment

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In the United States, according to the Equal Employment Opportunity Commission, employers must follow guidelines set out by the Americans with Disabilities Act (ADA) with consideration for COVID-19.[17] This means that employers must keep all medical information they gather from employees related to COVID prevention confidential. They must continue to offer individuals with disabilities reasonable accommodations as well as take into consideration the accommodation requests made by individuals at higher risk for contracting more serious cases of COVID-19, such as those who are 65 years of age or older and those with pre-existing conditions. Employers may have to re-negotiate reasonable accommodations for individuals with disabilities based on the changes to work environments brought about by the pandemic, such as the prevalence of remote work.[18] In some respects, the expansion of "work from home" arrangements in many businesses has actually improved employment opportunities for disabled people.[19][20]

According to the UN, individuals with disabilities are more likely to lose their jobs as a result of the pandemic and face more difficulty returning to work during the recovery period.[2] Individuals with long-term effects of COVID, such as chronic fatigue, may also face employment challenges.[21]

Visually impaired youth sharing his trauma about losing his job due to the COVID-19 pandemic because of an outstation issue—interviewed in Kolkata, West Bengal, India, September 2021

Education

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As of April 2020, schools had ceased in-person operations in 189 countries, affecting roughly 1.5 billion children worldwide.[12][22] Children with disabilities have faced a host of challenges related to remote learning. They have faced disruptions to the services they require as laid out in their Individualized Education Programs (IEP) and have struggled with many of the technologies used to carry out remote learning. Many types of assistive technologies, such as screen readers for the blind, are not compatible with the software platforms being used for remote learning.[23] Children with disabilities often require in-person assistance, such as various physical and occupational therapies, and most teachers are not trained in how to conduct education remotely for children with disabilities.[12][22] Parents of disabled children are also struggling, as they are being asked to provide many of the services their children receive in school without the training or expertise to do so.[23] Parents of children with disabilities are also concerned about the risks involved in their children returning to school. Children with disabilities are more likely to have other health conditions that increase their risk of COVID-related complications.[24]

Vaccine access

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For disabled individuals, COVID-19 vaccine distributions have raised some concerns. In many Western countries, such as the U.S., Canada, Australia, and across Europe, vaccine rollouts have been uneven, exposing and exacerbating many of the inequities disabled individuals face.[25][26][27][28] Despite disabled people being overall more willing to be vaccinated than those without disabilities, they have received vaccines at lower rates.[29] This vaccination-rate discrepancy likely grew from non-standardized vaccine rollouts; in the United States, for example, each state was allowed to differently implement the vaccine guidelines put forth by the Centers for Disease Control and Prevention (CDC).[29] Similarly, in Europe and Canada, there were no specific guidelines in place that provided accommodations to disabled individuals.[26][28] This lack of standardization and accommodation left many disabled individuals behind, unable to get the vaccine regardless of desire.[29][26][28]

A recent investigation into vaccine access in the United States conducted by the CDC cites access difficulties as one of the main reasons why disabled individuals are vaccinated at lower rates than the rest of the population. For example, many disabled individuals cite having trouble either getting to a vaccination location or making online appointments as one of the reasons why they have not yet been vaccinated.[25] To overcome these obstacles, the CDC has issued a set of guidelines with regard to vaccine distribution to disabled individuals. These guidelines outline changes that vaccine locations should make, such as making instruction and information available in both American Sign Language (ASL) and in braille.[25] Europe has also established similar guidelines.[30]

See also

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References

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  1. ^ "Disability considerations during the COVID-19 outbreak". www.who.int. Archived from the original on 2021-12-04. Retrieved 2020-10-08.
  2. ^ a b Policy Brief: A Disability-Inclusive Response to COVID-19 (PDF). United Nations. 2020. Archived (PDF) from the original on 2021-08-27. Retrieved 2020-10-02.
  3. ^ Leaving no-one behind: Considerations for children and adults with disabilities (PDF). UNICEF. Archived (PDF) from the original on 2020-09-23. Retrieved 2020-10-02.
  4. ^ Andrews, Erin E.; Ayers, Kara B.; Brown, Kathleen S.; Dunn, Dana S.; Pilarski, Carrie R. (2020-07-23). "No body is expendable: Medical rationing and disability justice during the COVID-19 pandemic". American Psychologist. 76 (3): 451–461. doi:10.1037/amp0000709. ISSN 1935-990X. PMID 32700936. S2CID 220716794. Archived from the original on 2021-12-30. Retrieved 2022-01-30.
  5. ^ "Preventing Discrimination in the Treatment of COVID-19 Patients: The Illegality of Medical Rationing on the Basis of Disability". Disability Rights Education & Defense Fund. 25 March 2020. Archived from the original on 2 September 2021. Retrieved 8 October 2020.
  6. ^ "OCR Issues Bulletin on Civil Rights Laws and HIPAA Flexibilities That Apply During the COVID-19 Emergency". HHS.gov. 2020-03-28. Archived from the original on 2021-08-14. Retrieved 2020-10-08.
  7. ^ Webster, Lucy (2020-07-04). "'It feels like we're being abandoned and left to die'". BBC News. Archived from the original on 2021-07-02. Retrieved 2020-10-08.
  8. ^ "COVID-19 Infections And Deaths Are Higher Among Those With Intellectual Disabilities". NPR.org. Archived from the original on 2021-11-09. Retrieved 2020-10-08.
  9. ^ "How COVID-19 impacts people with disabilities". American Psychological Association. 2020-05-06. Archived from the original on 2020-10-28. Retrieved 2020-10-08.
  10. ^ Naomi Thomas (28 August 2020). "Covid-19 has disproportionately impacted those with developmental disabilities". CNN. Archived from the original on 2020-11-06. Retrieved 2020-10-08.
  11. ^ Women with Disabilities in a Pandemic (COVID-19) (PDF). UN Women. 2020. Archived from the original (PDF) on 2020-12-03. Retrieved 2020-10-06.
  12. ^ a b c "Child disability and COVID-19". UNICEF DATA. Archived from the original on 2020-10-09. Retrieved 2020-10-08.
  13. ^ Aishworiya, Ramkumar; Kang, Ying Qi (2020-08-20). "Including Children with Developmental Disabilities in the Equation During this COVID-19 Pandemic". Journal of Autism and Developmental Disorders. 51 (6): 2155–2158. doi:10.1007/s10803-020-04670-6. ISSN 1573-3432. PMC 7438977. PMID 32816170.
  14. ^ Patel, K. (2020). "Mental health implications of COVID-19 on children with disabilities". Asian Journal of Psychiatry. 54: 102273. doi:10.1016/j.ajp.2020.102273. PMC 7330593. PMID 32653852.
  15. ^ Levine, Hallie (10 June 2020). "As the Country Opens Up, Children With Disabilities Are Getting Left Behind - The New York Times". New York Times. Archived from the original on 9 October 2020. Retrieved 8 October 2020.
  16. ^ Beery, Zoë (24 August 2020). "Disability, Work and Coronavirus: What Happens Now?". New York Times. Archived from the original on 8 October 2020. Retrieved 8 October 2020.
  17. ^ "What You Should Know About COVID-19 and the ADA, the Rehabilitation Act, and Other EEO Laws". US EEOC. Retrieved 2022-08-28.
  18. ^ "What You Should Know About COVID-19 and the ADA, the Rehabilitation Act, and Other EEO Laws | U.S. Equal Employment Opportunity Commission". www.eeoc.gov. Archived from the original on 2020-10-08. Retrieved 2020-10-08.
  19. ^ Schur, Lisa A.; Ameri, Mason; Kruse, Douglas (December 2020). "Telework After COVID: A "Silver Lining" for Workers with Disabilities?". Journal of Occupational Rehabilitation. 30 (4): 521–536. doi:10.1007/s10926-020-09936-5. PMC 7645902. PMID 33156435.
  20. ^ Kiesel, Laura; Peng, Jingnan (October 27, 2020). "For those with disabilities, shift to remote work has opened doors - CSMonitor.com". www.csmonitor.com. Archived from the original on 26 August 2021. Retrieved 26 August 2021.
  21. ^ Spiggle, Tom. "Are Long-Term Coronavirus Complications Considered Disabilities Under The ADA?". Forbes. Archived from the original on 2020-10-09. Retrieved 2020-10-08.
  22. ^ a b "Empowering students with disabilities during the COVID-19 crisis". UNESCO Bangkok. Archived from the original on 2020-10-05. Retrieved 2020-10-08.
  23. ^ a b Hill, Faith (18 April 2020). "Special Education Goes Remote in the COVID-19 Pandemic - The Atlantic". The Atlantic. Archived from the original on 9 October 2020. Retrieved 8 October 2020.
  24. ^ North, Anna (6 August 2020). "Covid school closures: what they mean for kids with disabilities - Vox". Vox. Archived from the original on 5 October 2020. Retrieved 8 October 2020.
  25. ^ a b c "Vaccinating Older Adults and People with Disabilities at Vaccination Clinics | CDC". www.cdc.gov. 2021-08-10. Retrieved 2022-03-20.
  26. ^ a b c "'It's devastating' disabled people not prioritized in vaccine rollout, advocates say". Coronavirus. 2021-02-08. Retrieved 2022-05-01.
  27. ^ "Statement of ongoing concern - The impact of and responses to the Omicron wave of the COVID-19 pandemic for people with disability". Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability. Retrieved 2022-03-20.
  28. ^ a b c "Vaccine (in)equity – no right of way for persons with disabilities in the EU". European Economic and Social Committee. 2021-04-08. Retrieved 2022-05-01.
  29. ^ a b c Epstein, Sabrina; Ayers, Kara; Swenor, Bonnielin K. (2021-06-01). "COVID-19 vaccine prioritisation for people with disabilities". The Lancet Public Health. 6 (6): e361. doi:10.1016/S2468-2667(21)00093-1. ISSN 2468-2667. PMC 8059990. PMID 33894137.
  30. ^ Hattie, John; Zierer, Klaus (2017-12-06), "I see assessment as informing my impact and next steps", 10 Mindframes for Visible Learning, Routledge, pp. 12–23, doi:10.4324/9781315206387-2, ISBN 978-1-315-20638-7, retrieved 2022-05-01